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Congenital lesions account for only about 2% of heart disease that presents in adulthood. As surgical and medical techniques have improved, more and more children are now reaching adulthood. In the United States, there are many more adults with congenital heart disease than children, with an estimated 2 million adults in the United States surviving with congenital heart disease. In 2018, the ACC and AHA released updated guidelines for the assessment and treatment of patients with adult congenital heart disease. As the number of patients with adult congenital heart disease has grown, there has been an increased appreciation of the need for more training and guidelines. A specific subspecialty board and training program has been initiated. The American College of Cardiology/American Heart Association (ACC/AHA) and the European Society of Cardiology (ESC) have published guidelines for the management of adults with congenital heart disease. The AHA issued a scientific statement in 2015 reviewing common issues for adults with underlying congenital heart disease, a statement in 2017 for pregnant patients with congenital heart disease, and a statement in 2017 regarding noncardiac issues in these patients.

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Bhatt  AB  et al. Congenital heart disease in the older adult: a scientific statement from the American Heart Association. Circulation. 2015 May 26;131(21):1884–931.
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Canobbio  MM  et al; American Heart Association Council on Cardiovascular and Stroke Nursing; Council on Clinical Cardiology; Council on Cardiovascular Disease in the Young; Council on Functional Genomics and Translational Biology; and Council on Quality of Care and Outcomes Research. Management of pregnancy in patients with complex congenital heart disease: a scientific statement for healthcare professionals from the American Heart Association. Circulation. 2017 Feb 21;135(8):e50–87.
[PubMed: 28082385]  
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Lui  GK  et al; American Heart Association Adult Congenital Heart Disease Committee of the Council on Clinical Cardiology and Council on Cardiovascular Disease in the Young; Council on Cardiovascular Radiology and Intervention; and Council on Quality of Care and Outcomes Research. Diagnosis and management of noncardiac complications in adults with congenital heart disease: a scientific statement from the American Heart Association. Circulation. 2017 Nov 14;136(20):e348–92.
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Stout  KK  et al. 2018 AHA/ACC guideline for the management of adults with congenital heart disease: a report of the American College of Cardiology/American Heart Association Task Force on Clinical Practice Guidelines. J Am Coll Cardiol. 2019 Apr 2;73(12):e81–e192.
[PubMed: 30121239]
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Warnes  CA. Adult congenital heart disease: the challenges of a lifetime. Eur Heart J. 2017 Jul 7;38(26):2041–7.
[PubMed: 28011704]

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