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PALLIATIVE CARE

DEFINITION & SCOPE

Palliative care is medical care focused on improving quality of life for people living with serious illness. Palliative care addresses and treats symptoms, supports patients’ families and loved ones, and helps ensure that care aligns with patients’ preferences, values, and goals. Near the end of life, palliative care may become the sole focus of care, but palliative care alongside cure-focused treatment or disease management is beneficial throughout the course of a serious illness, regardless of its prognosis.

The Center to Advance Palliative Care's definition states, "Palliative care is specialized medical care for people with serious illnesses. This type of care is focused on providing patients with relief from the symptoms, pain, and stress of a serious illness—whatever the diagnosis. The goal is to improve quality of life for both the patient and the family. Palliative care is provided by a team of doctors, nurses, and other specialists who work with a patient's other doctors to provide an extra layer of support. Palliative care is appropriate at any age and at any stage in a serious illness, and can be provided together with curative treatment."

Palliative care includes management of physical symptoms, such as pain, dyspnea, nausea and vomiting, constipation, delirium, and agitation; emotional distress, such as depression, anxiety, and interpersonal strain; and existential distress, such as spiritual crisis. While palliative care is a medical subspecialty recognized by the American Board of Medical Specialties and governing bodies around the world (“specialty palliative care”) and is typically provided by an interdisciplinary team of experts, all clinicians should have the skills to provide “primary palliative care” including managing pain; treating dyspnea; identifying mood disorders; communicating about prognosis and patient preferences for care; and helping address spiritual distress. Advanced certification in palliative care for healthcare organizations is offered by The Joint Commission, and the World Health Organization has adopted a resolution calling for the integration of palliative care services into the structure and financing of national healthcare systems.

During any stage of illness, patients should be screened routinely for symptoms. Any symptoms that cause significant suffering are a medical emergency that should be managed aggressively with frequent elicitation and reassessment as well as individualized treatment. While patients at the end of life may experience a host of distressing symptoms, pain, dyspnea, and delirium are among the most feared and burdensome. Management of these common symptoms is described later in this chapter. The principles of palliative care dictate that properly informed patients or their surrogates may decide to pursue aggressive symptom relief at the end of life even if, as a known but unintended consequence, the treatments hasten death. Randomized studies have shown that palliative care provided alongside disease-focused treatment can improve quality of life, promote symptom management, and even prolong life.

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Basch  E  et al. Overall survival results of a trial assessing patient-reported outcomes for ...

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